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My sister and her husband spent christmas with me and my family, she came over from Western Australia, I'm in Victoria. My sister has only been married to her husband 3 years, and he was diagnosed with motor neurone 18 mths ago. It is an awful advancing disease as time goes on, the nerves to the muscle from the brain stop working and muscles are wasted, and eventually they die from respiratory failure. At the moment his leg is dragging, his speech is inaudible{he talks with sign, and a speaking machine, has difficulty chewing cause his tongue wont move, but he still eats, soft food. I can hear when he swallows his is having difficulty swallowing his saliva. All this is going to get worse in the next 6 to 12 months until he is a drooling mess in a wheelchair, unable to move a muscle, and death will be his demise. I get so incredibly sad but only after he leaves, he seems so optimistic, and thinks he is not going to die, death is from 2 to 6 years, I've done the research on the net.
He was such a vital life loving person, and such a happy and lovely person, he made you want to be around him. I cannot comprehend any of this, and I panic cause this disease advances all the time.
My sister found her soulmate too late in her life she is 47 he is 48, and it will be cut too short. I need some spiritual support, I believe in God, and this world is full of so much pain and grief.
Jenkydora
He was such a vital life loving person, and such a happy and lovely person, he made you want to be around him. I cannot comprehend any of this, and I panic cause this disease advances all the time.
My sister found her soulmate too late in her life she is 47 he is 48, and it will be cut too short. I need some spiritual support, I believe in God, and this world is full of so much pain and grief.
Jenkydora