I want to find other people who have them and to hear about their experience. It can be similar to mine or very diiferent to mine. I'd love to hear anyone who has or used to have it or knows something about them.
These brain zaps or ''brain shakes/shivers'', ''electricity in brain'', ''mini-epilepsy'' etc whatever you call it is not a well-researched thing and nobody knows why they happen exactly. (Another proof against those claims that we're so medically progressed and that we've achieved most things etc).
I've been having it for years. I think it started when I was 13-15 years old and I still have it from time to time.
In my case it happens only during sleep (one of the first phases of sleep). I feel electrical activity in my brain from mild to huge one, but it's always unbareable and scary. I usually see some dream when it happens, but I can feel my body and I can feel like I'm lying down. Sometimes I'm lying in my dreams and sometimes I'm walking and it feels super realistic. Sometimes I can see my room in dreams and other times it's me somewhere else, but these dreams are still different compared to ones that I see when I don't have brain zaps. I've never had a dream about walking and doing mundane things or lying in my room though.
Anyway, at some point in these dreams I feel this electrical activity. I can predict it happening some milliseconds/a second before. I can manage to wake up and it's not continuing when I'm awake, but I still have afterfeeling in my brain. I don't know what to compare this afterfeeling to so far. When I'll figure out how to describe it I'll write it down. If I don't manage to wake up because these ''brain zaps'' drag me down to sleep or because my tiredness is way stronger than my wish to wake up and escape this, I see the next dream with 'brain zaps' and the next one afterwards etc till I wake up.
1) It used to be just brain zaps.
2) Then during some time (when I was around 18 ) it was companied by jaw clenching and convulsions of jaw. I would have those thing with jaw for about hald of a minute after I'd wake up. I wouldn't be able to move it down (to open my mouth more) or I would be able but only to certain extent.
3) I don't have this stuff with my jaw anymore. Now I can only feel vibration (similar to that of a cellphone, but as if I were a cellphone instead) in my teeth and my head and maybe my whole body. They vibrate along with my brain when this thing is happening.
4) Nowadays it's usually companied with this horrible and extremely loud buzzin g noise/tinnitus that appears shortly after the beginning of a 'brain zap' attack. It's a new thing that never happened to me before. But I also have a tinnitus most of the time when I'm awake. Although the sounds are quiet and different. I think my tinnitus is like that of most people who also experience it, so there's nothing unusual about it.
I have always thought of it as a short, mild epilepsy attack. It haven't drastically progressed over the years or anything like that. I had an MRI and an EEG tests 3 years ago. They found no brain damage on MRI and there was something mild and complicated on EEG, plus I have a small photosensitivity (reaction to flashing lights) which I myself knew before. But no doctor recommended to do anything in particular about it. I visited 2 neurologists and I explained them my 'brain zaps' in details and they didn't say anything about them, even the one that was considered the best one in the town.
I've been wondering what that was for years and I couldn't find anything on the internet. I only recently found out it has a name thanks to my therapist. And I was able to find a tiny bit more about it on the internet.
I know it's mostly known as an after effect of stopping to take some anti-depressants, but I don't take any psychiatric meds and I never did. Plus those people have it when they're awake, but I only have it during sleep.
I only have a chronic autoimmunal thyroid illness and a thyrotoxicosis due to being off meds for a long time, not treating my thyroid and then having a huge stressful experience and a breakdown. I started to have many neurological symtoms 3,5 years ago. It started midly but it went rampant when I had that stressful experience. I freaked out back then and after going through numerous tests and doctors I found out it was due to thyroid issue that progressed into almost clinical thyrotoxicosis. My brain zaps, however, started to appear very long ago, almost a decade before these symptoms started to happen.
On the internet they also say it can be due to anxiety and stress. I have those every day, but I don't have brain zaps every day. There used to be time when it would happen almost every day or twice-thrice a week during a few weeks and then stop and then appear again. Sometimes it can be two days in a row, sometimes per one day. It can disappear for a week, few weeks, a month, a few months, even 6-9 months and then it comes back. It's not tied to anything at all. I used to think it was tied to my exposure to electromagnetic fields (compluters, electronic devises). I used to have this phobia or feeling of being sensitive to electromagnetic fileds (like Chuck from ''Better call Saul''). But seems like it's doesn't depend on it either.
This thing is very real and physical and I can't control it with a thought or something else
It's not just me ''being anxious''.